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The Empowered Patient
Infection Defense Kits
"Making you an active partner with your health care team"

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What to Do?

1. Educate yourself about how these infections are transmitted and what you can do to block their transmission. This website is a good place to start. Others are www.safecarecampaign.org and www.hospitalinfection.org. Most caregivers have been thoroughly trained in infection control practices and work hard to guard you from risk. However, even the most diligent professionals make mistakes, especially in emergent situations and while multitasking. And unfortunately hospital equipment and surfaces are not always as clean as you might think, as outlined here (link to “other facts”, page 9 of this text). As a patient or advocate, you should pay close attention and ask questions.

2. Discuss your care and concerns with your physician. All surgeries carry risk of infection and other complications. Review this list of questions prior to your surgery (take notes):

  • What operation are you recommending?
  • Why do I need the operation?
  • Are there alternatives to surgery?
  • What are the benefits of having the operation?
  • What are the risks of having the operation?
  • What will happen if I don't have this operation?
  • Where can I get a second opinion?
  • What has been your experience in doing the operation? How many have you performed?
  • Where will the operation be done?
  • What kind of anesthesia will I need?
  • How long will it take me to recover?
  • How much will the operation cost?

3. Take steps to team with your caregivers to protect yourself. The Empowered Patient™ Infection Defense Kit offers a range of products custom-designed and/or carefully selected to help you be part of your own “health care team”. If you choose not to purchase a kit, at least educate yourself and BRING HAND SANITIZER (minimum 60 % alcohol content) to the hospital. Keep it at your bedside and ask everyone – including visitors – to clean their hands before touching you. Take the step of cleaning surfaces in your bedside environment you or others may touch, especially high-touch surfaces like remote controls and call buttons, bedrails, tray tables, etc. And do not eat, touch your mouth, eyes or any cut in skin without cleaning your hands first.

4. Help toughen laws in your state. As of June 2008, 26 states and the District of Columbia have passed laws to mandate the public reporting of hospital infection rates. Find out if your state is one of them.

5. Help change federal law. Here’s a link to help you send an email to your congressional representatives:

6. Here are some places to get information about medical conditions and hospital quality: (from the Agency for Healthcare Research and Quality (AHRQ), under the U.S. Dept. of Health and Human Services.

  • Healthfinder.gov: The U.S. Department of Health and Human Services developed this Web site for consumers. It provides links to more than 1,500 health-related organizations.
    Go to: http://www.healthfinder.gov
  • Hospitalcompare.hhs.gov: This government Web site provides information on how well hospitals treat patients who have been admitted for certain medical conditions.
    Go to: http://www.hospitalcompare.hhs.gov
  • Quality Check™.org: This Web site is a guide to health care organizations and is sponsored by an organization called the Joint Commission. You can search by city and state, or by name and ZIP Code (up to 250 miles).
    Go to: http://www.qualitycheck.org/consumer/searchQCR.aspx
  • Nonprofit Organizations: Many nonprofit organizations provide education and support to patients and their families about certain diseases. They can direct you to physicians who are experts in treating those diseases.

7. Share your story via email
“You may never know what results come of your action, but if you do nothing there will be no result”       –Mahatma Gandhi

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"My father should have come home after surgery, but instead died March 28, 2008 after 5 horrible months in intensive care of a C-diff infection. We are all inconsolable. I can't bring back my father, or lesson our tremendous grief. But knowing what I know now, I would not hesitate to get an Infection Defense Kit, and I would urge any caregiver to do the same. It could give your parent or loved one one a fighting chance”

--Gregory Gardner, Son of the late John Gardner